For the past few weeks, Andrew was appearing pale and increasingly lethargic. On Wednesday afternoon, he went in to the pediatrician and the doctor noticed that his spleen appeared enlarged and an ultrasound revealed an abdominal mass. Andrew was admitted immediately into Huntington and underwent tests through the night. The next morning, we learned that Andrew has a type of cancer called Neuroblastoma. That afternoon, Andrew was transferred over to Childrens Hospital, where he is now. Several exhausting tests, a blood transfusion, and many many hours spent with doctors later, we’ve learned that the cancer has invaded his bones, lymph nodes and tissue, and Andrew is diagnosed as in Stage 4 of this horrible disease.
OK, that’s all the bad news. Onto the good: Andrew is in one of the best cancer programs nation-wide, and is being cared for by an incredible team of caring doctors and nurses. Treatment plans are better than ever, and the prognosis for children with this form of cancer has been improving steadily over the past 15 years. And we have an incredible support group to lean on.
Andrew is starting his first round of aggressive chemotherapy tonight, and we expect to stay in the hospital until the middle of next week. He’ll be able to do the rest of his chemo out-patient, followed by surgery to remove the (shrunken)tumor and then radiation, all of which should be done in about 7 months. The goal is to keep him infection-free, and to try to keep the rest of his life as normal as possible.
What can you do? Think positively. Paul & Cynthia need words of encouragement, inspiration and funny stories. Laughter and distraction are always good. Keep them in your prayers. Help us make sure that Lucia’s life stays fun and light. And let’s all of us stay strong as we begin this journey. Andrew is going to beat this.
27 comments:
Team Andrew!
We love you guys.
Go, go, go Andrew! You can do it. We're all cheering for you. Get out there and kick some . . . . bottom!
We love you so much. Aunt Judy and Uncle Pete
We are here for your friends and thinking of you moment by moment. Our prayers are with you and one incredible little fighter. Love - Volland's
Our hopes, prayers and thoughts are with you. Get well quick Andrew!
Andrew you WILL beat this!!!!We are sending our prayers... The power of prayer is an amazing thing. A positive attitude is everything. Keep your spirits up, enjoy every day as it is a present and know if there is anything we can do please don't hesitate to ask.
Maggie Young and family
Stay strong Andrew!
Hey local folks -- if you are looking to help out - call the Children's Hospital blood donation center (323-361-2441) and give blood and/or platelets (I believe Andrew will need both when he does Chemo). Giving platelets takes 2 hours, so keep that in mind when you go. Andrew's birthday is Feb 26, 2005 -- you will need that info. when you go in and tell them you are giving blood for Andrew.
Andrew CAN do it! You are in the best hands both with your doctors and your friends. We will all pull through this together. Let us know whatever you need, ANYTIME! We love you guys tremendously and will continue to think only the most positive thoughts!
Lots of love -
Grettie and Lou
We love you all. Our hearts and prayers are with you. Stay strong.
Love,
David, Elizabeth & Hayden
We're thinking of you guys and wishing you all the best.
Love,
Jennifer, Alex, Oliver and Leo
Andrew, chin up Buddy! We all know how big a boy you are, and how well your tummy the doctors and you are going to fight this bug.
Lucia, I am sure you are the best big sister a boy could have. We all think of you. Never forget that if at any time Mummy and Daddy are not around, many, many, many other grown ups who love you very much will be there to hold you tight and remind you that everything will be ok.
Cynthia and Paul, you know how close all this is to me, and yet and can't start imagining going through it holding a child's hand. I feel so far away... I wish I was there for the million simple things that will make the difference... The yummy dinners waiting for you in the fridge after forgetting to eat for a whole day, discovering that a good soul has made sure that bills are taken care of, someone to clean up the car and make sure Andrew comes home in a clean environement... Everybody is ready to help, even those so far away... Don't ask, just get someone to coordinate for you, don't worry about it, don't worry about thanking... You will have time for it all when Andrew is better... Your job is to get him better, love him and Lucia like every child should be loved, and most importantly never loose sight of each other... From Andrew and for Lucia, you are the corner stone to their comfort. You can be strong or weak (and you will be both) together you are everything they both need.
Lot's of love to the 4 of you... Thumbs up to the support team, please tell me what I can do...
Lots of love
Sebastien in Amsterdam
Andrew, Lucia, Paul and Cynthia;
We are all here cheering for you on the East Coast. A crew of Deerfield classmates got together yesterday and they all want to send their best (the Spaters, Hansons, Willis and Bauermeisters) from Vermont.
Keep up the good fight! You will win.
Gordie
Paul, Cynthia, Lucia and Andrew,
We love all of you and will have you in our prayers. Casa Hennigan is yours if you need a hospital break.
Phyllis and Mike
Hi Andrew! I know you are a special and strong little guy, we have heard some great stories about you from your Auntie Donna. We want you and your family to know that we send prayers to all of you. Stay strong and positive and know the Lord is with you. Paul and Cynthia, we are so far away but can still help. Please let us know what we can do for you. Love, Cynthia Trahan and Family
Cynthia, Paul, Lucia and Andrew,
We are thinking of you and will help in any way we can-- starting with our O+ blood. You have a bunch of the red stuff coming your way!
All best wishes,
Liz and Steve Olson and family
Cynthia & Paul,
Our prayers and thoughts are with you. We will sign up to give blood and platelets ASAP. We know Andrew is going to beat this because he has already passed the background check of a small group of suitable suitors for a 2 year old little girl in Manhattan Beach named Ava who can't wait to meet him. Stay strong and know that everything is going to be OK.
Jeff & Sylvia Le Sage
Hey Guys,
After 30 years, you should know that you can ask for anything. Let us know how we can help. Give a hug to everyone from all of us. Stay Strong.
Love,
Peter, Laura, Eric and Evie
Hi - we are friend's of Gordie Spater's and wanted to leave a quick note of encouragement. Our 20 month old underwent a bone marrow transplant at the Boston Children's Hospital last December to treat a rare form of Leukemia called JMML. We're now 13 months out and Brett is doing great. We have met some strong little ones that have done extremely well with their neuroblastoma treatment.
I can see that your attitude and network are super positive. If your plans ever lead towards BMT or you have any other lifestyle questions, we would be happy to help in any way we can (781-762-3111). We'll be thinking of Andrew.
Krista and Chris Hobson
Dear Andrew, Lucia, Cynthia and Paul,
We are praying for a blanket of comfort to surround you all as you go after this. Our hearts and home are open for anything we can do to help.
Love,
Leah and Maddie
Andrew will be in our daily thoughts and prayers. We think about him and smile!
Cynthia, Paul, Lucia and Andrew,
Our thoughts and prayers are with you.
Hope and prayers,
Tony, Linda and Sofia
Andrew, Lucia, Cynthia & Paul:
Thinking tons about you all. I know Andrew will fight all the way to victory and show us how its done!
Brian, Meg and Hannah
The Hoffman Family is sending strength to you and prayers every day. I will be designating my 0+ blood on Monday the 28th- All our love to you, Christina, Paul, Katie, Johnny & Audrey
Andrew (and family):
Schoolmate Gianna (and her family) send our best hopes and wishes and prayers. We have had experience at CHLA with Gianna's bro Ryland. Everybody there was always very good to us and the other families. You are in very good hands. We will miss you at school, but would love to come see you when the time is right. You have an open offer for help from us as well. Stay strong Andrew.
Gianna Repetti and family.
Contact: frankrepetti@earthlink.net
Thinking of you from DC - we miss all of you and we are thinking of Andrew daily. You are all tremendously special people - your little man is strong like his parents and big sis!
Wishing Andrew a speedy recovery!!!!
Paul & Donna
Cynthia,
I just wanted to let you know that I'm thinking of you and your little guy and wish you all strength on Andrew's road to recovery!
Strangely, I know another little boy on the other side of country who was diagnosed with stage 4 neuroblastama at the end of November. I doubt you are checking your work email regularly but I will send his website information in case you are interested.
Emily Culler
Filippone’s
You guys are in my thoughts and prayers! Please let me know if there is ANYTHING I can do for you.
I Love you all!
Karl
Paul and Cynthia,
We just wanted to let you know we are thinking about you guys. You are in our thoughts and prayers.
Chris, Summer,Parker,Logan, and Chloe McKee
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